Power outages, slow internet, and understaffed hospitals plague healthcare systems in black Africa. To make progress on these problems in Malawi, TED Fellow Soyapi Mumba and his team created a new system from scratch — from the software that powers their electronic health records to the infrastructure used to support it. Read excerpts from Mumba’s TED talk.
Like every passionate software engineer out there, I closely follow technology companies in Silicon Valley, pretty much the same way soccer fans follow their teams in Europe. I read articles on tech blogs and listen to podcasts on my phone. But after I finish the article, lock my phone and unplug the headphones, I’m back in sub-Saharan Africa, where the landscape is not quite the same. We have long and frequent power outages, low penetration of computers, slow internet connections and a lot of patients visiting understaffed hospitals.
Since the HIV epidemic, hospitals have been struggling to manage regular HIV treatment records for increasing volumes of patients. For such environments, importing technology systems developed elsewhere has not worked, but in 2006, I joined Baobab Health, a team that uses locally based engineers to develop suitable interventions that are addressing healthcare challenges in Malawi.
We designed an electronic health record system that is used by healthcare workers while seeing patients. And in the process we realized that we not only had to design the software, we had to implement the infrastructure as well. We don’t have enough medical staff to comprehensively examine every patient, so we embedded clinical guidelines within the software to guide nurses and clerks who assist with handling some of the workload.
Everyone has a birthday, but not everyone knows their birthday, so we wrote algorithms to handle estimated birthdates as complete dates. How do we follow up patients living in slums with no street and house numbers? We used landmarks to approximate their physical addresses.
Malawi had no IDs to uniquely identify patients, so we had to implement unique patient IDs to link patient records across clinics. The IDs are printed as barcodes on labels that are stuck on personal health booklets kept by each patient. With this barcoded ID, a simple scan with a barcode reader quickly pulls up the patient’s records. No need to rewrite their personal details on paper registers at every visit. And suddenly, queues became shorter. This meant patients, typically mothers with little children on their backs had to spend less time waiting to be assisted. And if they lose their booklets, their records can still be pulled by searching with their names.
Now, the way we pronounce and spell names varies tremendously. We freely mix R’s and L’s, English and vernacular versions of their names. Even Soundex, a standard method for grouping words by how similar they sound, was not good enough. So we had to modify it to help us link and match existing records.
Before the iPhone, software engineers developed for personal computers, but from our experience, we knew our power system is not reliable enough for personal computers. So we repurposed touchscreen point-of-sale terminals that are meant for retail shops to become clinical workstations. At the time, we imported internet appliances called i-Openers that were manufactured during the dot-com era by a failed US company. We modified their screens to add touch sensors and their power system to run from rechargeable batteries.
When we started, we didn’t find a reliable network to transmit data, especially from rural hospitals. So we built our own towers, created a wireless network and linked clinics in Lilongwe, Malawi’s capital.
With a team of engineers working within a hospital campus, we observed healthcare workers use the system and iteratively build an information system that is now managing HIV records in all major public hospitals in Malawi. These are hospitals serving over 2,000 HIV patients, each clinic. Now, healthcare workers who used to spend days to tally and prepare quarterly reports are producing the same reports within minutes, and health care experts from all over the world are now coming to Malawi to learn how we did it.
It is inspiring and fun to follow technology trends across the globe, but to make them work in low-resource environments like public hospitals in sub-Saharan Africa, we have had to become jacks-of-all-trades and build whole systems, including the infrastructure, from the ground up.
Click here to listen